Effective Date: May 1, 2026
The National Lymphedema Network (“NLN,” “we,” “us,” or “our”) is a nonprofit organization committed to protecting your privacy. This Privacy Policy explains how we collect, use, disclose, and protect personal information through our website and related digital communications.
1. Scope of This Policy
This Privacy Policy applies to information collected through this website and through forms, registrations, email sign-ups, donations, membership actions, event registrations, and other online interactions connected to this website.2. Information We Collect
Information You Provide Directly
We may collect personal information that you voluntarily provide, including:- Name
- Email address
- Mailing address
- Phone number
- Organization or employer name
- Professional details or credentials
- Membership information
- Event registration information
- Sponsorship or exhibitor inquiry information
- Donation information
- Survey responses
- Any other information you choose to submit through forms or communications
Information Collected Automatically
When you visit our website, we may automatically collect certain information, including:- IP address
- Browser type
- Device type
- Operating system
- Referring pages or links
- Pages viewed
- Time spent on pages
- Approximate location information
- General website usage data collected through analytics tools such as Google Analytics 4 (GA4)
3. How We Use Information
We may use the information we collect to:- Respond to inquiries and requests
- Process memberships, event registrations, sponsorship inquiries, donations, and other submissions
- Send newsletters, updates, announcements, fundraising messages, and promotional emails
- Provide program, event, and organizational communications
- Improve our website, programs, services, and outreach
- Monitor website usage and performance
- Maintain internal records
- Comply with legal obligations
- Protect the security and integrity of our website and organization
4. Email Communications
If you sign up for our email list or otherwise provide your email address, we may send you newsletters, updates, event invitations, membership information, fundraising messages, and other communications related to the work of the National Lymphedema Network. You may unsubscribe from email communications at any time by clicking the unsubscribe link in the email or by contacting us at nln@lymphnet.org.5. Cookies and Analytics
Our website may use cookies, analytics tools, and similar technologies to improve website functionality, understand how visitors use the site, and support communication and outreach efforts. These tools may collect information about your device, browser, pages viewed, time spent on the website, and general interactions with the website. We use this information to improve user experience, monitor performance, and better understand how our content and programs are used. You may be able to control cookies through your browser settings. Disabling cookies may affect how certain features of the website function.6. How We Share Information
We do not sell your personal information. We may share your information with trusted third parties that help us operate our website and services, including but not limited to:- Website hosting and support providers
- Email communication platforms
- Analytics providers
- Payment processors
- Membership, registration, or form platforms
- Professional service providers assisting with administration, compliance, or operations
- To comply with applicable law, regulation, legal process, or lawful request
- To protect the rights, property, or safety of the National Lymphedema Network, our users, or others
- In connection with a merger, transfer, or reorganization of organizational assets, if applicable
7. Third-Party Services and Embedded Content
Our website may include links to third-party websites or use third-party tools such as embedded forms, payment processors, videos, analytics tools, and event or membership systems. We are not responsible for the privacy practices of those third parties and encourage you to review their privacy policies separately. The inclusion of any third-party link, resource, or service does not imply endorsement or approval by the National Lymphedema Network unless expressly stated.8. Data Retention
We retain personal information for as long as reasonably necessary for the purposes described in this Privacy Policy, including to provide services, maintain records, comply with legal obligations, and resolve disputes.9. Data Security
We take reasonable administrative, technical, and organizational measures to help protect personal information. However, no method of transmission over the internet or electronic storage is completely secure, and we cannot guarantee absolute security.10. Children’s Privacy
This website is not directed to children under the age of [13], and we do not knowingly collect personal information from children through the website without appropriate consent where required by law. If you believe a child has provided personal information through our website, please contact us at nln@lymphnet.org.11. Your Choices
You may:- Unsubscribe from email communications at any time
- Contact us to update or correct information you have submitted
- Request deletion of certain personal information, where appropriate and subject to legal or operational requirements
- Adjust your browser settings to manage cookies