Research and Study Opportunities
Help Shape the Future of Lymphedema Care and Education
By taking part in these research surveys and studies – developed by dedicated healthcare professionals and researchers from within the community – you contribute valuable insights that guide program development, inform clinical practices, and support patient advocacy. Every response counts – and yours could make a lasting impact.
Share Your Research With the NLN Community
Are you a healthcare professional, researcher, or student looking to share a research survey or study with the NLN community? Complete the submission form to request a posting.
Active Clinician and Organization level members may post surveys at no cost, while active Supporter and Directory level members receive 50% off. Students may also post for free with proof of active matriculation.
Explore NLN Continuing Education Opportunities
Advance Research
Participate in research surveys and studies that help expand knowledge, strengthen education, and support progress across the lymphatic community.
Inform Better Care
Your feedback can help guide clinical understanding, improve patient support, and shape future approaches to lymphedema care.
Community Impact
Every response contributes to a larger effort to elevate awareness, advocacy, and evidence-informed resources for patients and professionals alike.
Current Research and Study Opportunities
Explore active surveys and studies shared with the NLN community. Each opportunity is designed to gather meaningful insights that can help inform research, improve care, and strengthen support for people impacted by lymphedema.
Lipedema: Understanding the Whole Picture
Volunteers are needed for an online survey to fully understand the impact of lipedema on overall quality of life, sexual health and continence, and physical dysfunction.
Participants:
- Must have a diagnosis of Lipedema or believe they have by passing the lipedema symptom survey
- Be at least 18 years of age
- Be able to read and comprehend an informed consent document in English
Lymphedema Life Impact Scale Validation in Spanish / Validación de la escala del efecto del linfedema en la vida en español
Institution / Department: The Unit on Vascular Malformations at the Eunice Kennedy Shriver National Institute for Child Health and Human Development (NICHD) at the National Institutes of Health (NIH) is conducting a research study to validate the Lymphedema Life Impact Scale (LLIS) in Spanish. We are interested in learning the utility of this scale in Spanish and the differences between the Spanish and English versions.
Who can participate: Any individual 18 years old or older with upper and/ or lower lymphedema that prefers to seek medical care in English or Spanish
Patient Perspectives on Values Discussions During Surgical Cancer Care
Researchers at UAB are conducting a brief anonymous 10-minute survey to understand how cancer patients experience conversations with surgeons when making treatment decisions. Adults (18+) diagnosed with cancer in the past 2 years who met with a surgeon are eligible.
Explore More Research Opportunities
Looking for more ways to stay informed and involved in the advancement of lymphatic care? Explore additional research updates, clinical insights, and educational content through NLN resources designed to keep patients, clinicians, and researchers connected to emerging developments in the field. It is another meaningful way to stay engaged with the broader conversation and support continued progress in lymphedema awareness, care, and advocacy.