About the National Lymphedema Network

Our Story

The National Lymphedema Network (NLN) began with a bold vision: to bring hope, education, and advocacy to the millions affected by lymphedema worldwide. Founded by Saskia RJ Thiadens in 1988, a pioneer determined to transform the lives of patients and clinicians alike, the NLN has grown into a trusted and respected leader in the lymphedema community.

With an unwavering commitment to raising awareness, providing education, and driving innovation, the National Lymphedema Network empowers patients, caregivers, and medical professionals to navigate lymphedema with knowledge, compassion, and confidence. Through cutting-edge resources, expert-led conferences, and a vibrant community network, the NLN has become more than an organization – it’s a movement fueled by resilience and shared purpose.

At the heart of our story is the belief that every individual affected by lymphedema deserves access to world-class care, unwavering support, and a voice in shaping the future. Together, we stand as champions of change, paving the way for improved treatment outcomes, holistic care, and a brighter tomorrow. The NLN story is one of empowerment, innovation, and unity – a story that continues to grow, inspired by the lives we touch and the futures we transform.

Mission

The National Lymphedema Network’s mission is to empower our community of lymphedema practitioners and patients by providing educational opportunities, networking opportunities, and interventional resources. We aim to inspire clinicians to provide world-class care for people with lymphedema by promoting best practice guidelines and standards of care.

Vision

The National Lymphedema Network envisions a future where everyone understands lymphedema and best practice treatment approaches, when science will highlight the extent of the lymphatic system’s role in the preservation of health, and when the incidence of lymphedema becomes minimal.

Values

The National Lymphedema Network values respect, collaboration, communication, diversity, community, transparency, social responsibility, ethical leadership, and eco sustainability.

History of the NLN

1985

Saskia RJ Thiadens has her first encounter with a person living with lymphedema

1987

Saskia opens the first lymphedema clinic in the US

1988

The National Lymphedema Network (NLN) is founded.

1989

The NLN Membership is formed, and the NLN Newsletter is officially published.

1990

The first NLN lymphedema support group is formed in San Francisco, CA.

March 6, 1994

The first Lymphedema D-Day is held.

1994

The 1st NLN Conference is held in San Francisco, CA.

1996

The NLN website is created – lymphnet.org.

1998

LANA formed by the schools instructors, NLN, and other members of the lymphatic community

2002

Lymph Science Advocacy Program launched

2007

Marilyn Westbrook Garment Fund was created, now known as the NLN Garment Program

2012

10th NLN Conference – Nashville, TN

2019

New NLN Logo

2021

NLN Expert Clinician program launched

2022

17th NLN Conference – Cleveland, OH

2025

NLN Start Strong launched
Four NLN Conferences held across the US

Be Part of the NLN Community

Whether you are seeking support, looking to learn, or ready to help advance awareness and care, the National Lymphedema Network offers meaningful ways to get involved. Explore the resources, programs, and community that bring patients, caregivers, advocates, and professionals together.