Until lymphedema becomes a household word, it is imperative that we gather accurate information to best present our case for lymphedema awareness, education, risk reduction, treatment, research and insurance reimbursement.
By collecting this data, we are helping to make history in American medicine. To date, there has been limited statistical data available related to primary and secondary lymphedema (i.e. incidence, education, causes, sites, infection, access to treatment, and more). Your responses to the questions below are important. The more insight we gain from patients such as you, the stronger we become in our quest to establish lymphedema, and lymphology, as an important component of mainstream American medicine.
You may participate in one of two ways. You may (1) complete and submit the survey online or (2) print, complete and return the paper copies to: NLN, 116 New Montgomery Street, Suite 235, San Francisco, CA 94105 or by fax at: (415) 908-3813.
Thank you so much for taking a few moments to complete and submit this survey. Please Note: Completion of demographic information is voluntary. Your contact information - name, address, phone, email - will be kept strictly confidential and used only for our internal records.
Please answer the following questions as accurately and completely as possible; incomplete surveys cannot be fully analyzed. Be sure to read the questions carefully before answering. If you need assistance, please email the NLN office at email@example.com. Thank you again for helping us understand the experiences and issues related to lymphedema so that we can advocate and serve on behalf of persons with lymphedema.