Testimonials

  • Dear Mr. Westbrook,

    I don't think that "thank you" expresses the amount of appreciation I have. I am a recipient of the Marilyn Westbrook fund for my compression garments. I have quite a few chronic health problems - one of them being lymphedema. About a year and a half ago, I was diagnosed with a rare disease called Dercum's disease, which has caused lymphedema in moderate amounts in my legs and stomach, and minor in my arms. I have a durable medical equipment cap - which I reach with my diabetic (type 1) supplies. I have to pay 100% for my compression stockings and without the grant, I was unable to get the proper garments. Living a life with many chronic health problems can sometimes leave me feeling hopeless and you helped bring hope back to my life. I am married with a seven year old boy and a four year old girl. I want to be able to play with them with less pain. You have helped me be a better mom. Your kindness has greatly impacted my life and more specifically my physical and emotional health

    God bless you and thank you,

    April Rabillard


  • Dear Mr. Westbrook,

    I am writing this note to thank you from the bottom of my heart for the wonderful garments that I am now using to treat my Lymphedema.

    They are so much easier to use, and more effective than traditional wrapping.

    My life has become so much more enjoyable, and it is all because of the great work that your foundation is doing.

    Keep up the good work. I know that your wife, Marilyn, would be very proud of you!

    With much gratitude,

    Elizabeth Kober


  • Dear Doyle and Saskia:

    One of my patients is a recent recipient of your generous compression garment program. She received 2 thigh high Solaris@ Tribute garments that she could not afford to purchase on her own. Since her medical insurance is Medicare her garments are not covered.

    Until receiving these garments, my patient's daughter was attempting to bandage her but was herself not in good enough physical shape to continue doing so. My patient has been in and out of the hospital a few times in the past year with life threatening cellulitis due to venous insufficiency wounds and lymphorrhea excoriating both of her legs and feet. She was not able to go anywhere because of the copious amounts of lymph fluid leaking out of her legs. Having her new Solaris@ Tributes has given her back her quality of life. From the bottom of my heart I can't thank you enough for such a tremendous gift. Doyle, the commitment you have made in honor of your wife's memory is a beautiful tribute and I feel especially touched that one of my deserving patients has been able to "live again" through your generous program.

    Saskia, what can I say except that you are the "glue" that keeps our ever growing lymphedema community together and the facilitation of the Marilyn Westbrook Garment Program is just another great reason why the NLN is so very crucial to the survival of lymphedema programs all around the world.

    Yours With Gratitude,
    Mary Rosenberg, CLT-LANA
    (on behalf of Barejouhi Kourkounian)


  • To: Doyle Westbrook and the NLN

    I cannot express how many times since receiving my nighttime compression sleeve hat I have cried over it. It is because of the gratitude I feel for the National Lymphedema Network's and Marilyn Westbrook Garment Fund's understanding of what it is like to lose the ability and the financial means to take care of oneself.

    Once I was asked by a medical professional why I "only" had Medicare and why I didn't plan ahead. I did.

    In the span between 1998 and 2001 I had had five back surgeries. The costs were so astronomical I went through all my money, a $30,000 annuity, sold my car, and used credit cards for prescription drugs. The pain medications alone are over $375 for two prescriptions a month, so that I am able to dress myself and walk around. The costs from the stage three breast cancer surgery, chemotherapy, and radiation were also very high and 1 now have to worry about an additional $250 a month, for five years for cancer medication.

    With the severe lymphedema problem that affects my left arm, hand, chest wall mass and breast mass I must always have compression garments on all day and all night, Since compression garments only last three to four months it can become extremely expensive to treat lymphedema, which makes it important that the NLN and the MW Garment Fund continue to help not only myself, but others. Thanks to these two organizations, and their donors I do not have to worry as much about the costs for the care of my lymphedema.

    Again, thank you for your caring and understanding.

    Dorothy C. Hansen


  • To Doyle Westbrook:

    I can hardly find words to thank the Marilyn Westbrook Garment Fund and the National Lymphedema Network for their wonderful contributions to increasing lymphedema awareness, as well as the generous donation that was made on behalf of my needs for lymphedema garments. I have only begun to see the progress that medicine has made in its understanding of lymphedema; however, the field of study has the potential to make significant achievements in growth and awareness.

    Your organization has @uly dedicated itself to lymphedema awareness and education, and because of this, you were able to help someone like myself who could not afford garments for management of my condition. I have been battling primary lymphedema since birth. It was only recently that I began to receive proper treatment for my condition. In the past I was told that the disease was not manageable. I received liposuction each year on my right leg and right arm and used a compression pump for the first 14 years of my life; Additionally, I wore compression garments that seemed to make the swelling worse. Throughout this period my family continued to pay out of pocket as insurance companies fought to say that the treatment was maintenance or for cosmetic reasons. Due to what I believe was a result of poor medical management and understanding, when I was fourteen I was hospitalized with a pleural effusion in both lungs which turned out to be chylous lymphatic fluid. I spent three months in the hospital being treated as nothing more than a guinea pig. From that point, management of my lymphedema was minimal with the fear that aggressive therapies would return the fluid to my lungs. The lymphedema also began to spread to my left upper and lower extremities during that period.

    Currently, I am attending Columbia University to receive my Doctorate in Physical Therapy. Throughout my volunteer and work experiences, I have encountered many who face. similar uncertainties about the prevention and progression of their lymphedema. This summer I started a month long treatment at The Norton Clinic for Lymphedema in New Jersey and continue to make amazing gains with manual lymph drainage and complex decongestive therapy. It was only because of my faith and understanding in complex decongestive therapy that I decided to commit to life long management utilizing this form of treatment. I've lost about 3 112 liters in my right leg and almost a half a liter in my left arm. I feel absolutely great and only hope to continue to make gains. As a full time student at Columbia University, I was not able to afford proper Circaid compression garments for nighttime use. With the help of the National Lymphedema Network and Marilyn Westbrook Garment Fund, I will continue to make gains in managing my own condition, so that I can one day be a part of educating others who struggle to do the same.

    I thank you for all of your kindness and hope that you continue to do what you do best. There are so many people out there that could use your help. I will continue to do my part as well. If there is anything I can do for your organization, whether it be as a patient or a soon to be physical therapist, I will gladly assist you in any way I can.

    Thank you,

    Dana DiMari


  • To: NLN, Doyle Westbrook

    Words cannot express my gratitude for receiving the lymphedema sleeve through your foundation. It's wonderful that Marilyn Westbrook had the vision to create this foundation.

    Gratefully yours,

    Rita M. Silva


  • Dear Saskia R.J. Thiadens, R.N.,

    Many thanks to you and the Marilyn Westbrook Garment Fund for the gift of a new set of Circaid Graduates below the Knee "moon" boots.

    My only income is a small monthly social security check. With my medical bills from a recent nursing home stay I wouldn't have been able to puchase a new set to replace the older set I have been using. I really appreciate the gift from the Marilyn Westbrook Garment Fund.

    May God bless.

    Yours Truly,

    William Burket


  • To The Marilyn Westbrook Foundation:

    Thank you for giving me the opportunity to be a recipient of the Lymphedema Foundation. It will give me a chance for freedom and to wear the clothes and shoes I want and I won't be afraid of people staring at me in the community. I now can get in and out of the tub without falling because my balance has gotten so much better. I know these garments will help me with my medical problems because it will help prevent my legs from swelling.

    I hope the Foundation gets more recognition so others like myself can benefit from their funds as well. Everyday life will get easier for me thanks to your generosity and give me a sense of freedom in my mobility.

    Gratefully Yours,

    Marian Santiago


  • Dear Marilyn Westbrook Fund,

    Thank you so much for the help concerning our daughter Allyson Hannah. It is a joy in our tiny world to know that people exist with such open hearts, and insights.

    We are spreading the word on the new treatments for Lymphedema. And our fondest thoughts are with you all daily.

    Tom Hannah, Marianne L. Hannah
    Spring 2009


  • To whom it may concern:

    I want to thank you and the National Lymphedema Network, for you great generosity because you have collaborated to my wellbeing, by donating to me the Leg Garment. It's been over one month I've been using the garment, and it has made a great deal of good to my legs, I feel so much better in the mornings because I wear it at night, and what a difference it makes through the days. Since I've been using this garment the legs is much less swollen, the fluids is less, I feel lighter when I walk, and I am able to do my house chores much easier.

    Thank you so much from the bottom of my heart, and I am so proud to be part of this organization, that makes a difference on people's lives, and it certainly made a difference in my and the way I feel. Thank you and may God bless you.

    Sincerely Yours,

    Maria R. Silva


  • Dear Mr. Westbrook, Ms. Thiadens:

    Just wanted to let you know that Bekki has received the compression sleeve that your fund so kindly paid for. We feel that it arrived just in time as her old garments were not fitting tightly enough and were thoroughly worn out. Her arm volume had begun to increase at almost all measurements and she had to go back to bandaging at night. Hopefully, now with the better fitting garment, her arm will improve again.

    A big thank you to the Marilyn Westbrook Garment Fund for helping Bekki and others like her. You are doing a wonderful work in the world.

    Sincerely,
    Karen Crippen (Bekki's mom)


  • Hi Saskia,

    After our conversation the other day, I realized I never sent you, NLN, and the Westbrook Foundation my deepest thanks for providing my patient, Darlene Boland, with the funds to purchase her compression garment. As you know, her circumstances were quite dire and she would not have been able to afford this very essential component of her lymphedema care without your help. NLN and the foundation truly are lifesavers.

    Sincerely,
    Ronnie Gordon


  • William GRADUATED today! It was great. Everyone was tearful - happy tears. He has come such a long way. Here is his letter. I typed, he spoke. I wish I could put in the smile he had on when he was writing it. Thanks again, Tracey

    Dear MWGF,
    Today is my graduation from Wyatt Rehab. I have been coming every-day to every-3-days since October 2010. Today I am leaving in my Bia Care Leg Assists that were given to me by the Marilyn Westbrook Garment Fund. I would not be here if it wasn't for you. I am very grateful for your products and for giving me the chance to graduate. If I didn't have these garments, I would have humongous legs. I feel like I have made a huge accomplishment with these garments. They fit well. It took me a little time to practice putting them on but today I put them on without any help. Thank you for the scholarship and the achievement and the therapist.
    Sincerely,
    William Howard


  • A million thanks to the NLN for buying nighttime garments for me. A million thanks to Robin at the NLN for all the help and information that she gave me. She is truly and angel! A million thanks to Roberta Keenan at Lima Memorial Hospital in Lima, Ohio. She's the lymphedema therapist who measured me for the garments. A million thanks to the late Marilyn Westbrook, the very kind lady who inspired the garment fund. I deeply appreciate these garments and again, thanks a million!!!!

    Judy Davis


  • To Whom It May Concern,

    I wanted to write this letter to thank the National Lymphedema Network for all they have done to help me in my treatment of Lymphedema. Due to limited financial means at this time, I was unable to afford products that have been critical to my condition. Everyone at the National Lymphedema Network has been extremely helpful, courteous and professional. I am happy to support this organization and would recommend it highly.

    Sincerely,

    Peter Cafasso


  • To the Westbrook Fund:

    Thank you so much for donating a CircAid to me. I've been waiting a long time for this and it is such a big help in my daily routine. Your fund is a blessing and I hope it will continue to help many people like myself.

    Sincerely,

    Allyson Hannah (16 years old, Primary Lymphedema)


  • Thank you so much for assisting my patient, Fay Kelley, with obtaining her CircAid products. She is such a kind woman and is so active with her self-care. She is very grateful to the NLN and the foundation.

    Thanks again,

    Amy Steinhoff and Fay Kelley


  • Robin Miller and member of NLN. I want to thank you so much for paying for my garment. I appreciate it so much for I have a hard time keeping up with expenses in my condition. If it wasn't for these stockings I wouldn't be able to walk. From the bottom of my heart I thank you. Sincerely, Sarah Corcoran


  • National Lymphedema Network,
    Thank you so much! I appreciate all that you've done for me.
    Respectfully Yours,
    Kristina Georgoulakos


  • To whom it may concern:

    I am writing to thank you so much for the garments that you purchased for my lymphedema. I believe that God sent you to me through my therapist.

    My medical bills were already tremendous because of cellulitis, ultrasounds, medicine and doctor visits. I was confined to bed rest with leg elevation. I knew I needed therapy immediately, but I figured it was a lot cause because after two months of leg elevation, my leg calf had not gone down any - not even one inch.

    When my therapist mentioned that I would need garments and told me how much the garments cost, I almost fell off the table. I began to worry so much that I couldn't sleep at night.

    Then a miracle happened! My therapist heard of the National Lymphedema Networks Marilyn Westbrook Garment Fund and told me that the Fund may be able to help me purchase garments. I was very skeptical when we applied. Well, to my surprise, the Marilyn Westbrook Fund came through. I could not believe there was such a place like this Fund that would help me with my garments. My prayers were answered.

    I cannot thank you enough for helping me become more mobile. With the garments purchased for me by the Westbrook Fund, I look forward to putting my garments on every day. Hallelujah, I have been set free.

    Thank you so very much for believing in me, purchasing my garments, and for being there for me. I can never thank you enough. My family and I will always be grateful!

    Sincerely,
    Esther Glenn


  • National Lymphedema Network,
    There are not enough words to express the sincere gratitude I feel for the grant awarded me this year by the Marilyn Westbrook Garment Fund. They afforded me the opportunity for the first time in the twelve years that I have had lymphedema, to wear custom made garments. The CircAids that I was granted has made my life so much easier. The stress in spending hours weapping my legs each night is gone. The ease in donning the CircAids is a godsend.
    I not only wear them at night, but I wear them during the day especially if I work out in the garden, taking a quick trip to the grocery store and doing chores around the house. My mental attitude is improving in that I feel greater independence and not having to rely on family.
    If it were not for the kindness of the Marilyn Westbrook Grant and National Lymphedema Network, where I first read of the grant, I doubt that I would have been able to get better results in controlling my lymphedema.
    A deep gratitude to you from me and my daughters who have been my rock for these many years.

    Thanking you with all my heart,
    Eleanor


  • Dear Mr. Westbrook and Ms. Thiadens,
    This week I received my custom fit compression garment funded by the Marilyn Westbrook Foundation. Thank you for your generous gift. I am finding the Tribute garment, made by Solaris, to be extremely comfortable. Even in our current heat wave, I am able to sleep through the night wearing the garment. And, I must say, I don't miss the nightly wrapping routine. Although my thoughtful husband has not mentioned this, I am sure I speak for him too.

    I have already noticed a reduction in my arm! As you can imagine, I am very encouraged. We are keeping track of my measurements and look forward to being able to keep my lymphedema under control with this sleeve and self care.

    Also, my comfort level has greatly improved. This means a lot to me as I am able to continue to enjoy my gardening, teaching my jewelry classes, and weaving. I look forward to a healthier and more active style of living.

    I was unaware of the National Lymphedema Network until recently. I am finding the NLN LymphLink website to be very informative and helpful and have shared the information about NLN to others in my support group. Another person quite interested was my medical oncologist. He was unaware of the Tribute compression sleeve and it's benefits. I have scheduled a "show and tell" appointment with him so that he will be able to help other women with lymphedema due to breast cancer treatments.

    Thank you so much for this gift of hope, health, and encouragement.

    Sincerely,
    Barbara


  • I received a free garment earlier this year and I was very thankful because I needed one to control the swelling in my legs and I am retired and on a limited income. I was unsure of what to do because I really needed two sets of garments (one for day and one for evening) but with the help of the NLN I was able to get one of the sets. It helped reduce my stress due to worrying about my health. It's really important to have this resource available to people and I wish it was more known that this fund exists.
    --
    Sandy J


  • National Lymphedema Network,
    I would like to thank you so much for the CircAid garment that was donated to me free of charge. I have had lymphedema for ten years, as I am a survivor of breast cancer.
    When I first developed lymphedema it was at the end of my Chemo treatments and I really couldn't bear any more physical problems. This swelling in my left arm persisted to plague me. I moved back home to New York after radiation and sought treatment for my growing arm. When the first physical therapist told me I was going to have to wrap my arm every night and that this was not going away, I was furious. I did not wrap my arm out of spite (to myself) well needless to say, I wound up in severe pain with a ballooning arm and then was hospitalized for cellulitis.
    As I surrendered to this condition I had to start slow and work my way up in order to heal. I began wrapping my arm every single night and wearing a compression garment (sleeve & glove) during the day. This was quite an adjustment for me as I found these garments ugly in style and a total eye sore! People stared at me and always asked if I was in a fire. Children most always stared at me and I began to feel like a freak. Then an old high school friend told me to wear these compression garments as my armor, not to alienate myself from others or from life. Little did she know, her words helped me to persevere.
    I have wrapped my arm for ten years straight staying up late (on holidays) taking the time for myself that is needed to take good care of myself. My therapist now is proud of me because I always take the time out to roll and wrap my ever swelling arm. My therapist told me about National Lymphedema Network, how it will supply a garment to wear overnight so I do not have to roll and wrap my arm every night, I was surprised. I am so used to rolling and wrapping my arm every night it has become a ritual.
    Making this easier for me is a blessing, I am a single parent and struggle with the cost of garments; as they are very expensive and my medical insurance does not cover this, even though the only reason I have medical insurance is because of this illness or condition. Go figure? I am so very grateful for this effortless garment that was just given to me. The CircAid is an immense help to me. I don't even know if thank you is enough! The expense is great for this garment and now you're alleviated that for me. I am truly grateful for your generosity.

    Respectfully yours,
    Kristina


  • To whom it may concern, I want to THANK NLN very, very much. The sleeve and hand garments feel great to wear. I forget they are on my arm and hand until I start to use water. The night wrap is very comfortable at night also.

    I don't know what I would do without people like you. I could never afford the things I need to keep the swelling down and be so comfortable.

    Thanks a million and God bless all of you.


  • Dear Madam/Sir,
    I am very grateful for your gift of arm and hand garments. Prior to receiving them I could not participate in PT sessions since my garments were too worn and I had sewn seams on them because they had stretched from 4 years of use.

    Thanks again for your assistance.
    Yours Truly,
    Veronica


  • National Lymphedema Network:
    I just wanted to express my appreciation for my new nighttime compression boots. Thank you so much. It is wonderful to have an organization to help out when needed.
    Sincerely,
    Lucille


  • To National Lymphedema Network:
    I was so happy to have been a recipient last year of this fund. I would not have been able to afford the garment on my own. I am on disability and my insurance is Medicare and they do not cover these garments. I developed Lymphedema 10 years ago after I had been diagnosed with breast cancer and had chemo and radiation, and ended with a lumpectomy. At that time I was working and had good insurance. Last year I was diagnosed with Paget's disease and had surgery. That is when I also found out I had recurrence of my original cancer too and ended up having a mastectomy. If this was not bad enough, I ended up with an infection and my lymphedema became worse. I had lost my job and was about to lose the house when I heard about the Marilyn Westbrook Fund.
    I went on the NLN website where I found about this fund. I was very fortunate that my therapist was a member. I applied right away and within a couple weeks I had been approved. I was able to obtain the custom made garments I needed and could finally throw away the old ones that I had been given several years before.
    My lymphedema has stabilized since I received the garments and I am hoping that I will be able to apply again this year to the fund.
    Thank you so much for helping me. I encourage anyone who is in need of garments and have limited financial funds to apply.
    Thank you again for providing me with the funds to get my garments.
    Rochelle


  • Dear Marilyn Westbrook:
    I want to thank you for your gift of new wrappings for my legs. I'm overwhelmed by your generosity. I am an old handicapped lady desperately trying to care for my daughter who is neurologically impaired. It has been difficult financially. Your gift helps me considerably.

    You and your group are doing remarkable things. May you be blessed to continue your good work.

    Sincerely,
    Margaret


  • To National Lymphedema Network:
    I am very grateful to the Marilyn Westbrook Garment Fund for enabling me to receive a pair of compression stockings to help control my lymphedema. The stockings were done to my measurements which were taken by my own physical therapy. They arrived quickly and i am quite pleased with them. The stockings are doing a good job of keeping my legs from swelling excessively.

    In addition, I also joined the National Lymphedema Network which I learned about while applying for the MWGF stockings. The information I have received from this Network is quite informative and has helped me to understanding my condition much better than I had before.

    Both organizations have been a blessing to me and I heartily commend them for their work. I would urge anyone interested in compression garments to look into them.

    Sincerely,
    Nora


  • Dearest Saskia,
    You were kind enough to allow me to have new compression stockings. Your generosity helped me get through much depression over my bad health issues because through it all, I knew the compression stockings were there waiting for me to wear when I was healthy again. One of my doctors relented and let me wear them once in the operating room because he saw how important they are to me and my legs.
    Now I am able to wear them freely. I call them my "secret weapons" because they enable me to live and walk like a normal human being. I can attend mass every Sunday, and I can go up and down steps, clean my home, visit my children and grandchildren, and all the things that other people who don't have lymphedema are able to do naturally.
    You make all this possible for me, and I deeply appreciate it. And I'm grateful too for everyone else who helps people like me. Thank you, dear lady, and to everyone behind you. I'm Italian Roman Catholic and all of you are always in my prayers. I wish I could hug each one of you in the Lymphedema network, but I do so in my heart.
    Love,
    Anna


  • Dear National Lymphedema Network,
    My name is Norma Trice. I have had lymphedema for the last three years. I didn't know that until I met someone who has it. It took a stranger to tell me what was wrong with my body.
    But, thanks to you my health has improved a whole lot. I can walk around without being ashamed about the way I look. Because now I can explain to someone about the type of illness I have. I have stage 3 and without your help, I wouldn't receive the help I needed.
    So Thank You for helping a Mother to continue raising her son and o to school events without being ashamed.
    Sincerely,
    Norma Trice


  • Without your help I would not be getting my legs down so I can start walking again some day. Your help came at a great time. My husband had just had open heart surgery, and we didn't have the means to get my garments. Again, Thank You so very much. Go Bless Your Group for helping me.
    Sincerely yours,
    Brenda Davidson


  • Dear Saskia, Robin, & NLN Staff,
    Thank you SO much for approving my patients for the MWGF! Odessia and Sandy have completed their intensive CDT treatments and they would not be doing so well if this fund did not exist. It is with heartfelt appreciation that I send this note of thanks. This fund is so special and we are so lucky to have it.
    Tracy Podolsky, PT


  • Dear Ms. Westbrook,
    Thank you for all that you do.

    Sincerely,
    Barbara Heike


  • To Whom It May Concern,
    I wanted to write this letter to thank the National Lymphedema Network for all they have done to help me in my treatment of Lymphedema. Due to limited financial means at this time, and the help of the network, I was able to afford products that have been critical to my condition. I have been a member of the NLN since August 2011, and without the support of this network, my life would have been much more difficult. Everyone at the NLN has been extremely helpful, courteous, and professional. I would like to express my immense gratitude for the assistance I have received. I am happy to support this organization and would recommend it highly.

    Please do not hesitate to contact me if you have any questions.

    Sincerely,
    Peter Cafasso


  • I am writing to thank you so much for the circulation garments that you purchased for my lymphedema. I believe that God sent you to me through Dianne Kerr of the Marino Therapy Center here in Knoxville, TN.

    Dianne Kerr heard of the Lymphedema Network's Marilyn Westbrook Fund. She told me that the Fund may be able to help me purchase garments. To tell you the truth, I was very skeptical when we applied. I was thinking that the Fund wouldn't pay much and that I would have to get money from somewhere. Where" I had no idea! I wonders, "Why would they help me?" They didn't even know me!

    Well, to my surprise, The Marilyn Westbrook Fund came through. After applying I was approved, and I received my garments. With Marino and Westbrook Fund's help, I was no longer on bed rest. My depression began to subside. I could not believe there was such a place like this Fund that would help me with my circulation garments. My prayers were answered.

    I cannot thank you enough for helping me become more mobile, and releasing me from the monotony of wrapping and washing, untangling, and hanging wraps on coat hangers or hanging wraps over my walker in front of a fan to dry every day, day after day; week, after week. Usually, when a person has to do daily wrapping, they get tired and stop thus enabling the swelling to return.

    With the garments purchased for me by the Westbrook Fund, I look forward to putting my garments on everyday. What surprised me was that I can also sleep in them, and they are not as heavy as my old wraps. My new garments are easier to clean and dry and are more comfortable, and they are not as time consuming to put on. Placing three garments on my legs now instead of 20 was a Godsend. Hallelujah, I have been set free.

    When I received my garments, I wanted to just cry. I could not believe it. My family noticed a change in my attitude for the better. I didn't want to stop going to therapy either because Marino's staff took excellent care of me; I did not want to leave. Diane assured me that she will always be there for me, and that I would be coming back for follow-up treatments. This reassurance is what I needed because I was afraid that I could not continue my treatment myself without Dianne. I was afraid also that I wouldn't be able to purchase garments when these wear out. It is reassuring knowing that the Marilyn Westbrook Fund will be there for me also if funds are available and if I re-qualify!

    Thank you so very much for believing in me, purchasing my garments, and for being there for me. I can never thank you enough. My family and I will always be grateful!

    Sincerely,
    Esther


  • Thank you to the Marilyn Westbrook Garment Fund. I have a great lavender arm sleeve that I wear everyday! I alternate with my beige colored one but get lots of comments on the new colored one. Thanks for the help to get me a new sleeve and the help of my physical therapist to size me and fill out the paperwork with me!

    I hope others find help for their lymphedema too and can get some free garments through this foundation. They are wonderful to help us cancer survivors.

    Very good fund.
    Sherry


  • Thank you to the Marilyn Westbrook Garment Fund I have a great lavender arm sleeve that i wear everyday! I alternate with my beige colored one but get lots of comments on the new colored one.

    Thanks for the help to get me a new sleeve and the help of my physical therapist to size me and fill out the paperwork with me!
    Very good fund.
    Sherry Papaleo


  • I received the garment and I can't thank you enough for it! I am using it in conjunction with wrapping my leg and my therapy! It seems so far to be working well! Thank you so much for all your help and support! There's no way I could ever afford it on my own!

    Thank you deeply
    Jennifer


  • Lymphedema has had a profound effect on my life and it started at a young age. As a child in middle school, I remember my feet being swollen. My mother had the hardest time trying to find shoes that fit my feet at age 10. She would often invest large amounts of money in a pair of shoes that would be too uncomfortable for me to wear all day in school. There are many pictures of me as a child with my chubby legs and my swollen feet bubbling out of my shoes. I remember when most kids were out running and playing I was just relieved to go home and take my shoes off.

    As an adult I developed a legion of physical ailments. I had a severe case of osteoarthritis at age 25.I was also diagnosed with Fibromyalgia. A car accident at age 26 caused spinal issues that would cause me difficulties as well. After a total hip replacement at age 31, I developed Reflex Sympathetic Dystrophy. I had a lot of challenges to overcome as a young adult.

    It was the lymphedema that caused me the most discomfort at of my job. I worked at a community college for 20 years. I often had to walk briskly across the campus from building to building in between classes with a time limit of 10 minutes. By the time I arrived to each class my feet and calf was had increased in size exponentially it seemed.. On the days I could sit in the classroom I could manage to make it through the class without being distracted due to the discomfort in my feet and legs.

    A colleague suggested that I go see a Vascular Surgeon which I did. It was then I was diagnosed with primary lymphedema. I was told that there was no cure. I was never informed about any kind of possible therapy options. I got a prescription for compression boots where I had to sit three hours a day and out on these boots as they squeezed my feet and legs. Initially this treatment worked and I was pleased but the positive results did not last long.

    Some years later I had a total left hip replacement and after that surgery my feet and legs exploded with edema. It was extremely uncomfortable. A side effect of the surgery called drop foot caused me to have neuropathy in my left foot and leg and the edema was down right painful.

    I knew I needed to find some kind of treatment and heard about a Lymphedema Clinic at the Virtua in Motion Rehabilitation Center in Voorhess, NJ, where I made an appointment. There I met my first lymphedema therapist was wonderful. She did a series of massages on different lymph node points on my body and then she proceeded to wrap my calves and feet in foam and bandages. This was often difficult when she wrapped my left leg due to the neuropathy.

    The dilemma I faced was when my extensive and grueling therapy ended I did not receive the proper supplies I needed in order to maintain what was achieved in therapy. I was very distraught about the concept of my condition regressing which is exactly what happened

    A dear friend, Mary Anne, told me about another lymphedema therapy opportunity through Pennsylvania Hospital at the Penn Therapy and Fitness Center in Cherry Hill, NJ. It was minutes to my new apartment. I was thrilled. This is where I met Rebecca Golden, my present therapist. The philosophy of therapy was very different that Rebecca presented at my initial consultation. Rebecca would not start therapy until I considered how I would maintain it. Rebecca explained that I would need custom garments due to the shape of my feet and ankles. After discussing the price of garments, I left there feeling dejected but determined.

    I went straight home and did research and on a website I found information about the Marilyn Westbrook fund. I went back to see Rebecca and we commenced doing the same message and similar wrapping methods as I had done my fist round in therapy.

    When therapy came to an end, Rebecca and I discussed all the options as to which garment would be the best to control my lymphedema and manage my progress. We decided on the night time garment sold by the company Circaid. I was on Medicare and had a limited income. I was approved after applying for a grant from the Marilyn Westbrook fund.

    I was so grateful to have my “boots” from Circaid. I initially had been concerned that with my other physical challenges I would have a difficult time putting them on. This was not the case. I wore my garments every night and sometimes during the day as well. These garments delivered what the company promised. My feet and legs maintained the fluid loss I received in therapy with Rebecca.

    This past year I was in therapy again with Rebecca for a brief time. Not having the proper garments for the day time had caused my lower extremities to swell again. Once again I applied for a grant from the Marilyn Westbrook fund for day garments that would accompany my night-time garments. We decided to stay with the company Circaid and go with a day/night garment called Juxta-fit. The combination of the two garments is amazing. No pain, discomfort and very little swelling since I left therapy three months ago.

    I feel like a different person. I am so grateful to my Lymphedema Therapist, Rebecca Golden, for her exceptional skill, compassion and support. I am equally as grateful to the contributors of the Marilyn Westbrook fund for their financial support which has allowed me to reclaim my independence and sense of well being.


  • My name is Anne Braud. I would first like to say that I am grateful to the Marilyn Westbrook Garment Fund for accepting my application to get one free pair of custom stockings per year. That is a major weight lifted, financially, to someone who is disabled and is on a limited income. At first, I must admit, I was a little concerned about how my stockings would fit. I was concerned because my stockings have a silicon band, across the top, and I was worried that the silicon would dig into my swollen legs. I have had my stockings for a few weeks now, and I am pleased to say that there have been no problems with the way my stockings fit. The silicon band does not dig into my legs at all; they stay in place the way they should. I am pleased to say that I was worried about nothing, so going forward, if I am ever lucky enough to get another pair of stockings from the Marilyn Westbrook Garment Fund, I know that they will fit comfortably on my legs and I should have no problem at all with them.

    Thank You for your time
    Anne Braud


  • I'm SPEECHLESS and crying; thank you so much....you are giving me my first pair of garments so I can learn to manage life and be happy :-) THANK YOU!!!!!! Last night as I was getting into bed I stopped for just a slit second and whispered to my partner, "I have this feeling..........maybe it's time for my miracle?!" ----- who says miracles don't come true :-))))))

    Sincerely,
    Greg B.


  • I have been fortunate to receive free garments from the Marilyn Westbrook Garment Fund on a couple occasions. It is a blessing to receive them as I am on a limited income now that I'm retired. The garments are a great support to my legs which means I can stay mobile longer. Thank you so much!

    Sandy J


  • On behalf of myself and Sandra, we would like to give our deepest gratitude for the garment that was sent. The garment fits beautifully and Sandra is wearing it comfortably. It is a great service that you provide. It was truly a pleasure working with you!!

    Kelly Raymond, PT, CLT


  • To the Maryland Westbrook Garment Fund,

    I wanted to thank everyone from the Maryland Westbrook Garment Fund for all of your help in getting me the
    garment that I needed to help me keep my lymphedema under control. All of the staff that I have dealt with have been so friendly and helpful. If it was not for this fund, and the people who donate to it, I would not have been able to afford the garment that I so desperately need to help me sustain a better quality of life. The garment makes it easier and more comfortable to carry out my daily tasks, instead of always having to wrap my leg with the bandages and being so bulky. So again, I thank the fund and all who donate to it, it enables so many people like myself to have a better life. All of your efforts are very much appreciated.

    Marlo M.


  • Sept. 12, 2013

    In early spring of this year I found out I have lymphedema. I was referred to Rehab at St. Joseph Regional Medical Center where I started the treatments for my lymphedema. My friend has lymphedema also; her son found out about your organization and how you help people like me get the permanent garments, because of low income. I am very happy with my garments and for you helping me get them, otherwise I would have went through the treatments for nothing. I am very grateful.

    Linda C.


  • I recently went to a wedding. A friend I hadn't seen in over a year noticed that the size of my arm looked normal. She was amazed at the difference! Thank you so much for my sleeve, which I wear every day without fail!

    Blessings,
    Barbara


  • I have severe lymphedema from the knees down as did my dad's mom. It was picked up in 2000 but nobody in the small town I lived in knew a lot about it, until I moved and it was diagnosed in 2010. This lead to years of ace bandages and lymph massages three times a week with poor results, until 2012.

    I was told about the lymph wraps but neither my Medicare nor Medicaid would pay for them and they would cost more than my disability check.

    My main therapist would not give up. It took months but she found a grant to cover it ALL. They are marked and easy for my boyfriend to take off and put on. They wash well on gentle. You can still tell I have lymphedema but the pain and a lot of the swelling are reduced by one half.

    So glad Ann and I fought for this - Nancy G.


  • I have suffered with lower extremity lymphedema since 2003. I've gone through the wrap therapy, but it is hard for me to get the proper garments that help keep my swelling down. Thank you, Marilyn Westbrook Garment Fund for helping people who suffer from lymphedema. I'm happy that I can get help with a garment that helps keep my swelling down. Thank you to the Marilyn Westbrook Garment Fund for giving me the opportunity to maintain my independence. Thank you, Marion S.


  • I have been wearing the new Juxtafit leg garments which are a welcome break. They are used on each leg, each foot and each thigh. The Juxtafit replaced my circ-aids with the d-rings. Juxtafit is somewhat easier and allow me greater mobility with everyday activities as they are less bulky and an easier fit with pants legs. My wife finds them easier to handle as she is my care-giver. Our therapist, Kristi Newman Blair, at Wyatt Clinic was instrumental in suggesting their use.

    The fact that we have them at all is due to the generosity of the Marilyn Westbrook Garment Fund. My lymphedema requires constant attention and the new garments have made that care process somewhat easier.

    The MWGF is a wonderful organization for those of us who need help. In my case, my insurance did not cover the garments. Please know how very thankful we are to have received this help as it is so necessary for my everyday care. Thank you also to all involved in this wonderful organization. Again, a huge THANK YOU!!!!

    With sincere appreciation,
    Walter W. E.


  • Words can't express how grateful I am to the NLN for being there in my time of need, when my insurance wouldn't help. I wish I could show how much you have given back to me when I thought I would never get my legs and feet back!! Because of my custom fitted garments for my left and right feet and legs, I don't need a cane anymore and feel like I'm "normal" again! Without the foundation, I may have never been able to live like I should, only being 33 years old. When I almost gave up, I received the email that you would pay for what I couldn't, and I am FOREVER Indebted to you!!

    I am trying to raise money for a donation so you can help others and keep this AMAZING thing alive!!

    Thank you for helping me get my life back!

    Always,
    Gregory B.


  • To the National Lymphedema Network:

    I am writing to let you know that I like the way your stockings feel and fit on my legs. I also like the way the leg brace hugs and the control on my legs. They make me feel good. Thank you for introducing them to me. I look forward to receiving garments from you again next year.

    Sincerely Yours,

    Cora M.