National Lymphedema Network is now hiring!

The NLN is looking for the right candidate to fill the role of Executive Director.  

Click here for more information and to apply now!

 

Kelley Newman

Kelley Newman lymphedema ambassador NLN advocate patient

Instagram: Kinewman

I was diagnosed with secondary bi-lateral lower extremity lymphedema in 2011.  After being diagnosed with invasive cervical cancer I had a radical hysterectomy.  They removed 37 lymph nodes removed in my pelvis, and then I had chemotherapy and radiation.  After many years of occupational therapy, MLD, and compression, my condition worsened and I began experiencing cellulitis on a fairly frequent basis.  Through research and referrals, I finally found a surgeon that was able to perform a Vascularized Lymph Node Transfer on my right leg. Last year in August I had almost 4 liters of fluid removed from the same leg.  Since these procedures I have gone down 2 sizes in my compression garments, lost 2 pant sizes, and am able to live a more active life.  I can exercise again without pain and discomfort.  I have learned so much over the course of the last 5 years and want to do everything that I can to advocate for myself and others with this condition.